ME/CFS
Moderate → no benefit
ME/CFS after mono, still crashing from appointments and errands
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill for
- Not stated
- Last post
- Dec 2019
In their words
- Condition: ME/CFS
My mono then turned into ME/CFS
In context ↗ - At worst: Moderate
just going to doctor appts and the few errands I may run are enough to cause a crash for me.
In context ↗ - Now: No benefit
I wish someone had told me to stop and rest because it is very difficult if even possible to “undo” that harm already done.
In context ↗ - Began after: glandular fever or EBV
I got “mono” mononucleosis or the Epstein Bar Virus ... My mono then turned into ME/CFS
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
Stream 10607 became ill with mononucleosis/EBV, was misdiagnosed, and kept working and traveling while pushing through; her mono then turned into ME/CFS. She says this early overexertion made her sicker and may have caused lasting harm. By her December 2019 post she still had post-exertional malaise, with doctor appointments and a few errands enough to cause a crash. She avoided exercise and watched a lot of TV.
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What they tried
Also tried
Their words about each treatment
- pushing myself · Worse
was misdiagnosed and kept trying to go to work
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| at the start | mononucleosis/EBV followed by ME/CFSI got “mono” mononucleosis or the Epstein Bar Virus ... My mono then turned into ME/CFSIn context ↗ | Mild |
| at the start | kept working and traveling while illYou are are making yourself sicker by pushing yourself. I did the same at the start.In context ↗ | Not stated |
| 2019-12-10 | still crashing after appointments and errandsjust going to doctor appts and the few errands I may run are enough to cause a crash for meIn context ↗ | Moderate |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
just going to doctor appts and the few errands I may run are enough to cause a crash for me
In context ↗