Housebound with ME/CFS, somewhat better after nervous system reset and leaving school
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- Not stated
- Last post
- Jul 2026
In their words
- Condition: ME/CFS
Wondering About Mobility Aids for ME/CFS PEM
In context ↗ - At worst: Moderate
I am considering using a mobility aid to help me be less housebound
In context ↗ - Now: Somewhat better
I am on my way to recovery (reseting my nervous system and not going to school), and have been getting better
In context ↗
Read from 6 of their posts and comments; links to the 5 this page draws on
Summary
A Reddit user who had pushed through a school year on adrenaline, housebound with large crashes after small activity, reported getting better after resetting their nervous system and leaving school. Still mostly housebound, they wanted a mobility aid to walk outside without large crashes, and their mental health struggled with doing less. They still had trouble falling asleep at night.
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What they tried
What they credit
Also tried
Their words about each treatment
- reseting my nervous system · Helped
I am on my way to recovery (reseting my nervous system and not going to school), and have been getting better
In context ↗ - pacing · Not said
Of course I will keep pacing and I am still not going to do nearly as much as I used to
In context ↗ - meditation · Helped
The thing I find helps me most (more than meditation, etc.)
In context ↗ - diaphragmatic breathing · Helped
I also find diaphragmatic breathing to calm my nervous system the most.
In context ↗ - being in nature · Helped
The thing I find helps me most (more than meditation, etc.) is just being in nature, even for just a little while
In context ↗ - consistent routine for sleep · Helped
I find that a consistent routine helps me sleep
In context ↗
Approaches: Brain retraining · Mind-body practices
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| — | Mostly housebound, pushing through the school year on adrenaline, large crashes after small activitybefore I was just running on adrenaline and ignoring my needs to try to get through the school yearIn context ↗ | Moderate |
| 2026-07-25 | Getting better after resetting their nervous system and stopping school; still housebound with crashesI am on my way to recovery (reseting my nervous system and not going to school), and have been getting betterIn context ↗ | Moderate |
Adverse events
- Meditation, yoga, breathwork“trying to do meditation etc. can sometimes be too much for me” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I want to be able to take walks outside and do small activities without such large crashes
In context ↗ - Anxiety & low mood
my mental health is struggling more now that I am doing fewer things
In context ↗ - Sleep problems
I also have trouble falling asleep at night
In context ↗
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