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Long COVID Moderate → no benefitIll for 4 years

Long COVID four years in, no activity and no overall improvement despite radical rest

Condition
Long COVID
At worst
Moderate (mostly housebound)
Ill for
4 years
Last post
Sep 2026
In their words
  • Condition: Long COVIDSame here, I stopped trying 2,5 years in and took radical rest. In context ↗
  • At worst: ModerateNo social activities, no family activities. No activity at all really....no life In context ↗
  • Now: No benefitI'm also not improving (4 years in now) In context ↗
Read from 1 of their posts and comments; links to the one this page draws on

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Summary

Four years into their illness, they said they had stopped trying two and a half years in and taken radical rest. Crashes became less frequent, now coming mainly after a virus infection, but they reported no overall improvement and were left with no social or family activities and no activity at all really.

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Asking aboutHawk 97392’s story

What they tried

Their words about each treatment
  • radical rest · HelpedI stopped trying 2,5 years in and took radical rest. Although I'm not crashing as much (now only when I have a virus infection or so). I'm also not improving (4 years in now) In context ↗

Their path

Very severeSevereModerateMildNear normalRecovered2.5 y3 y3.5 y4 y

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 2.5 years after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
2022became illNot stated
2,5 years instopped pushing and took radical rest; fewer crashesI stopped trying 2,5 years in and took radical rest. Although I'm not crashing as much In context ↗ModerateRadical rest
2026-09-20still not improving; no social or family activities, no activity at allI'm also not improving (4 years in now). ... No social activities, no family activities. No activity at all really....no life In context ↗Moderate

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