ME/CFS worse than ever and unable to live independently, pacing and therapy no help
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill for
- 12 years
- Last post
- Feb 2022
In their words
- Condition: ME/CFS
A rheumatologist diagnosed me with Chronic Fatigue Syndrome by process of elimination
In context ↗ - At worst: Moderate
Many days I can barely function.
In context ↗ - Now: No benefit
My body is just getting worse with time.
In context ↗ - Began after: nothing they could name
In 2010, I began feeling something was wrong in my body.
Summary
Badger 41595 fell ill in 2010 at age 22 and was diagnosed with chronic fatigue syndrome by a rheumatologist after two years of tests, though he doubts it explains everything. A 2013 mental health breakdown brought diagnoses of bipolar II and generalized anxiety disorder. Pacing, therapy and mental health medication did not resolve his physical symptoms. By 2022 he was worse than ever and could not live independently.
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What they tried
Also tried
Their words about each treatment
- therapy · Helped
started attending therapy and taking mental health meds ... my mental health was back to where it was before the breakdown
In context ↗ - mental health meds · Helped
I've also been on mental health meds since 2013 and have been on many combinations of them.
In context ↗ - pacing · No change
I try to do the pacing, but it's never really helped.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. 1 step has no time and sits in story order between the steps around it. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2010 | symptoms began at age 22 while studying full time and working part timeIn 2010, I began feeling something was wrong in my body. I was 22 years oldIn context ↗ | Mild |
| 2013 | mental health breakdown after grandmother's death; diagnosed bipolar II and generalized anxiety disorderled me to have a mental health breakdown in 2013, when I was diagnosed with bipolar II disorder and generalized anxiety disorderIn context ↗ | Not stated |
| — | nearly collapsed in the parking garage and dropped out of the teaching degreeHalfway through the fall semester, my health was so bad that I almost collapsed in the parking garage.In context ↗ | Moderate |
| 2022-02-17 | worse than ever, barely functioning many days, only able to work part timeNow, this year, I will be 34 years old, and am worse off than I've ever been.In context ↗ | Moderate |
Symptoms mentioned
Their words about their symptoms
- Anxiety & low mood
I wondered if I would have been better off if I had just had the fortitude to act on the suicidal ideations all of this caused me in the early years.
In context ↗