In bed with ME/CFS, somewhat better after apheresis, later crashed but less badly
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- Not stated
- Last post
- Dec 2024
In their words
- Condition: ME/CFS
I had a Inuspheresis (Apharesis) and it got me out of bed.
In context ↗ - At worst: Severe
it got me out of bed
In context ↗ - Now: Somewhat better
But i crashed again but not as badly as before.
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
They were in bed before an apheresis (Inuspheresis), which they said cleans the blood of environmental toxins and autoimmune components to help the body reset, and it got them out of bed. They later crashed again, though not as badly as before. They said the treatment is very expensive, insurance does not pay, and its long-term benefit is unknown.
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What they tried
What they credit
Their words about each treatment
- Inuspheresis (Apharesis) · Helped
I had a Inuspheresis (Apharesis) and it got me out of bed. ... But i crashed again but not as badly as before.
In context ↗
Approaches: Apheresis
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| — | in bed before apheresisit got me out of bedIn context ↗ | Severe | |
| — | out of bed after apheresisI had a Inuspheresis (Apharesis) and it got me out of bed.In context ↗ | Moderate | HELP apheresis / plasmapheresis |
| 2024-12-08 | crashed again after apheresisBut i crashed again but not as badly as before.In context ↗ | Moderate | |
| 2024-12-08 | still crashed but less severe than before | Moderate |
Adverse events
- HELP apheresis / plasmapheresis“But i crashed again but not as badly as before.” In context ↗ Made symptoms worse
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