Long COVID
No benefitNeeds ongoing treatment
Long COVID with ME/CFS, no improvement; vaccines made it worse
- Condition
- Long COVID
- At worst
- Not stated
- Ill for
- Not stated
- Last post
- Feb 2025
In their words
- Condition: Long COVID
I got it after I developed long COVID
In context ↗ - Now: No benefit
Made it worse both times.
In context ↗ - Began after: COVID
I got it before the vaccine was available.
In context ↗
Read from 6 of their posts and comments; links to the 4 this page draws on
Summary
Developed long COVID after a COVID-19 infection caught before vaccines were available, and described themselves as 'basically dying with ME/CFS'. They rely on Adderall for ADHD-related executive function and say they would be suicidal without it. Two COVID vaccine doses, taken hoping they would help, made the illness worse both times. No improvement is reported through February 2025.
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What they tried
Also tried
Their words about each treatment
- Adderall · Helped
It just makes me have executive function so I can think in a straight line and exist as an adult.
In context ↗ - COVID vaccine · Worse
Made it worse both times. I won't be doing that again.
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened |
|---|---|
| — | developed long COVID after a COVID-19 infectionI got it before the vaccine was available.In context ↗ |
| — | COVID vaccine made long COVID worseVaccine made me worse.In context ↗ |
| — | second COVID vaccine dose made it worse againMade it worse both times.In context ↗ |
| 2024-07-31 | still very ill with ME/CFS, dependent on AdderallI'm basically dying with ME/CFS and would definitely die without my Adderall.In context ↗ |
Adverse events
- COVID vaccination as treatment“Made it worse both times.” In context ↗ Made symptoms worse
- COVID vaccination as treatment“I have reacted to two other types before, but this was miserable.” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Anxiety & low mood
I get suicidal without my meds
In context ↗