ME/CFS
Moderate → relapsedIll 31 years before improving or writing
ME/CFS, improved then relapsed; magnesium and cannabis helped sleep and pacing
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 31 years
- Last post
- Oct 2022
In their words
- Condition: ME/CFS
I have had this illness since I was 11 I am now in my 40's.
In context ↗ - At worst: Moderate
I do this on in between days when I am too drained.
In context ↗ - Now: Relapsed
I thought I had recovered a year or two after I was diagnosed. ... I relapsed a few months later it was devastating.
In context ↗
Read from 4 of their posts and comments; links to the 4 this page draws on
Summary
Hill 51041 fell ill at age 11 and thought they had recovered a year or two after diagnosis, but relapsed a few months later, which they called devastating. Magnesium improved their sleep quality, though bad nights continued, and cannabis helped them regulate and pace. In their 40s, about 31 years after onset, they were still just trying to get through each day.
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What they tried
Also tried
Their words about each treatment
- magnesium · Helped
I have started taking magnesium. It has helped with my quality of sleep.
In context ↗ - cannabis · Helped
I have found it helps me regulate. I seem to prefer indica for before sleeping and sativa for if I need to do things. ... It does help with pacing I find.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| age 11 | fell ill at age 11I was 11 when I got sick.In context ↗ | Not stated |
| a year or two after diagnosis | thought they had recoveredI thought I had recovered a year or two after I was diagnosed.In context ↗ | Recovered |
| a few months later | relapsed and stayed illI relapsed a few months later it was devastating.In context ↗ | Moderate |
| 2022 | still ill in their 40s, using cannabis to help with pacingI have had this illness since I was 11 I am now in my 40's. It does help with pacing I find.In context ↗ | Moderate |
Symptoms mentioned
Their words about their symptoms
- Sleep problems
I still have nights I can't sleep but am utterly exhausted.
In context ↗