ME/CFS
Outcome unclear
ME/CFS with days of sleeping, daily pacing and highly individual symptoms
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill for
- Not stated
- Last post
- Jul 2026
In their words
- Condition: ME/CFS
Only a third of our symptoms are shared, the rest are highly individualistic.
In context ↗ - At worst: Moderate
I pace everyday conversations, important conversations daily. Otherwise I can sleep for days.
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
A person with ME/CFS writing in July 2026 describes pacing everyday and important conversations daily, but otherwise being able to sleep for days. They note that only a third of symptoms are shared between patients and the rest are highly individual. No onset, treatments or change in condition are described.
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What they tried
Also tried
Their words about each treatment
- pace everyday conversations · Not said
I pace everyday conversations, important conversations daily.
In context ↗
Symptoms mentioned
Their words about their symptoms
- Sleep problems
Otherwise I can sleep for days.
In context ↗ - Post-exertional malaise
I pace everyday conversations, important conversations daily.
In context ↗