ME/CFS
Outcome unclearIll for 33 years
ME/CFS for over 33 years, harmed by graded exercise, pacing as coping
- Condition
- ME/CFS
- At worst
- Not stated
- Ill for
- 33 years
- Last post
- Aug 2026
In their words
- Condition: ME/CFS
I've had MECFS for over 33 years
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
A person who had ME/CFS for over 33 years said they were severely damaged by the graded exercise therapy approach and by years of little effective management. They worked out pacing on their own as a coping technique after earlier advice to keep pushing proved confusing. They did not describe their current level of function or any recovery.
Ask Miruvor AI
What they tried
Also tried
Their words about each treatment
- GET approach · Much worse
was severely damaged by the GET approach and mostly NO approach for really all these years
In context ↗ - pacing · Helped
I found pacing as a coping technique on my own really
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | After |
|---|---|---|
| over 33 years ago | onset of ME/CFSI've had MECFS for over 33 yearsIn context ↗ | |
| over the following decades | severely damaged by GET approach and little managementwas severely damaged by the GET approach and mostly NO approach for really all these yearsIn context ↗ | |
| — | worked out pacing on their own as a coping techniqueI found pacing as a coping technique on my own reallyIn context ↗ | Pacing and the energy envelope |
Adverse events
- Graded exercise therapy (GET)“was severely damaged by the GET approach and mostly NO approach for really all these years” In context ↗ Made symptoms worse