ME/CFS
Mild → no benefitIll for 8 years
ME/CFS with fatigue and crashes, no improvement from antibiotics or antidepressants
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill for
- 8 years
- Last post
- Aug 2017
In their words
- Condition: ME/CFS
I'm a 19 year old CFS patient from BC, Canada.
In context ↗ - At worst: Mild
I am able to work part time during the summer and I go to university
In context ↗ - Now: No benefit
none of which helped
In context ↗ - Began after: nothing they could name
I have experienced symptoks of CFS since I was 11 (8 years now)
In context ↗
Summary
Tulip 38795, a 19-year-old in BC, Canada, had had ME/CFS symptoms since age 11 (eight years), diagnosed about two years before writing. A three-month course of antibiotics, several antidepressants, exercise therapy and elimination diets did not help. They could work part-time in summer and attend university but had to pace themselves, rated daily fatigue 7/10 and crashed as soon as they got home.
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What they tried
Also tried
Their words about each treatment
- antibiotics · No change
a 3 month course of antibiotics, several antidepressants, and exercise therapy, none of which helped
In context ↗ - restricting my diet · No change
I have tried restricting my diet, and did multiple trials of cutting things out to no avail
In context ↗ - vitamin D supplements · Not said
vitamin D levels were slightly low last time they checked but I'm on supplements so I'm assuming that has been remedied
In context ↗ - pacing · Not said
I do however have to pace myself and restrict activities that aren't vital to my school/work life
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were |
|---|---|---|
| age 11 | CFS symptoms beganI have experienced symptoks of CFS since I was 11 (8 years now)In context ↗ | Not stated |
| 2017-08 | working part-time over summer and studying, pacing to get throughI do however have to pace myself and restrict activities that aren't vital to my school/work life. I'd rate my daily fatigue as about a 7/10.In context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
bad enough that I crash as soon as I get home
In context ↗