? for those who feel "totally healthy" out of the blue
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill for
- since 1990 (~19 years)
- Published
- Nov 2009
Summary
Made dietary changes, eliminated food intolerances, and used amino acid supplements, CoQ10 and salt loading (possibly along with Emergen-C or guarana). Experienced repeated episodes of feeling "completely healthy" lasting from hours up to 3 weeks, including a stretch of 2+ days of full wellness with running, by the time of her later replies. She is candid that the wellness "never lasts" and says "I'm not so sure my body can maintain this," so she frames it as recurring partial remission rather than a lasting recovery.
What they credit
Credits Diet, Supplements, CoQ10 / ubiquinol, Salt, fluids and compression.
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