Kyle (video)
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving
- 18 months
- Published
- May 2024
In their words
- Condition: Long COVID
I'm here to talk a little bit about my long Co recovery Journey
- At worst: Moderate
I ended up dropping out of University ending my Rel my relationship with my girlfriend uh having to stop exercising for around a year and a half
- Now: Recovered
from the perspective after having recovered of after two years
- Began after: COVID
I initially got Co in October 2020
Summary
Kyle developed long COVID after catching COVID in October 2020 and was ill for about two years. He left university and work and stopped sport, and had post-exertional malaise, headaches and depression. After hitting a low point at about 18 months, he credited meditation, a brain retraining course and practising acceptance of his symptoms, and he later said he had recovered. He found strict pacing and elimination diets added to his stress.
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What they tried
What they credit
Also tried
Their words about each treatment
- watching recovery stories · Helped
the best way to do that is just to watch uh positive uplifting recovery stories that's that's what I had to do
- strict pacing · Worse
I was living from a place of fear-based pacing super super strict activity scheduling and pacing and it was stressing me out way more than it was helping me
- strict elimination diets · Worse
I also um was very fixated on super strict elimination diets
- meditation · Helped a lot
meditation was very very helpful for me
- symptom acceptance practice · Helped a lot
this is my opportunity to retrain my response by sitting with the symptom and really just accepting it
- brain retraining course · Helped
I did a brain retraining course
- books · Helped
I read a few books
- spiritual path · Helped
I needed to go down a spiritual path to kind of help recover
Approaches: Brain retraining · Mind-body practices
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 18 months after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| October 2020 | caught COVIDI initially got Co in October 2020 | Not stated | |
| after a year and a half | hit rock bottomit all culminated in me hitting rock bottom basically | Moderate | |
| after 2 years | recovered, back to things he enjoyedI was able to start to do the things that I enjoyed again | Recovered | Meditation, yoga, breathwork |
Adverse events
- Pacing and the energy envelope“it was stressing me out way more than it was helping me” Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
very bad postexertional Mala
- Headaches & migraine
loads of fatigue really bad headaches
- Anxiety & low mood
I was so depressed and very like didn't want to exist anymore
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