Long COVID
Moderate → somewhat betterIll 6 months before improving or writingNeeds ongoing treatment
Long COVID POTS with standing heart rate 170 and A&E, somewhat better on ivabradine and mindset
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 6 months
- Last post
- Oct 2023
In their words
- Condition: Long COVID
I’m in my 6th month of POTS it’s getting better, ebb and flow.
In context ↗ - At worst: Moderate
still not able to function properly without repercussions.
In context ↗ - Now: Somewhat better
I’m in my 6th month of POTS it’s getting better, ebb and flow.
In context ↗ - Began after: COVID
I’m in my 6th month of POTS it’s getting better, ebb and flow.
In context ↗
Read from 6 of their posts and comments; links to the 5 this page draws on
Summary
Moon 58740 has POTS and by October 2023 was about five to six months in, with a standing heart rate reaching 170 and an admission to A&E. Ivabradine, started by their cardiologist, brought the heart rate down somewhat, though it stayed elevated and they still could not function properly without repercussions. They hoped to come off the medication eventually and felt mindset made a big difference.
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What they tried
Also tried
Their words about each treatment
- propanalol · Worse
propanalol gives me palpitations which I already have
In context ↗ - Ivabradine · Helped
Ivabradine is making some difference, I think it takes a while.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| 2023 | POTS onset; standing heart rate 170, ended up in A&E and was admittedMy standing HR was 170 before they put me on Ivabradine.In context ↗ | Moderate | |
| September 2023 | heart rate on standing came down slightly on Ivabradinewhen I stand my heart rate goes up to 140, but with meds it’s come down slightlyIn context ↗ | Moderate | Ivabradine |
| 2023-10-03 | still not able to function properly without repercussions; getting better, ebb and flowI’m in my 6th month of POTS it’s getting better, ebb and flow.In context ↗ | Moderate | Ivabradine |
Adverse events
- Propranolol (Inderal)“No, my BP is not effected and propanalol gives me palpitations which I already have.” In context ↗ Heart rhythm problems
Symptoms mentioned
Their words about their symptoms
- POTS & dysautonomia
I still have an elevated heart rate but not as bad
In context ↗ - Heart symptoms & palpitations
propanalol gives me palpitations which I already have
In context ↗ - Post-exertional malaise
still not able to function properly without repercussions
In context ↗