ME/CFS
Severe → no benefit
Becoming severe with ME/CFS despite pacing, no improvement
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill for
- Not stated
- Last post
- May 2024
In their words
- Condition: ME/CFS
Becoming severe
In context ↗ - At worst: Severe
I am becoming severe despite pacing
In context ↗ - Now: No benefit
I am becoming severe despite pacing
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
By May 2024 they said they were becoming severe despite pacing and were genuinely fearful of becoming stuck in a state where they could not end their own life. They said there was no dying with dignity for non-terminal illnesses in the states and were scared their parents would never help them pass and would force them to suffer.
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What they tried
Also tried
Their words about each treatment
- pacing · No change
I am becoming severe despite pacing
In context ↗
Symptoms mentioned
Their words about their symptoms
- Anxiety & low mood
genuinely fearful of becoming stuck in a state where I cannot off myself
In context ↗