ME/CFS
Mild → no benefit
ME/CFS fatigue making work a struggle, still struggling despite caffeine
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill for
- Not stated
- Last post
- Sep 2025
In their words
- Condition: ME/CFS
My fatigue isnt as serious
In context ↗ - At worst: Mild
Now im working nights and late afternooms which is a little more bearable for me
In context ↗ - Now: No benefit
it has made it bearable but im still struggling
In context ↗
Read from 5 of their posts and comments; links to the 5 this page draws on
Summary
Maple 22673 reports fatigue that makes early mornings hard and work a struggle, with no diagnosis yet; they suspect narcolepsy. They relied on large amounts of caffeine, later working nights and late afternoons and sitting when possible, which made work more bearable. They tried doses up to 15 g of something that gave no mental boost but helped slightly with physical work; in August they were still struggling.
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What they tried
Also tried
Their words about each treatment
- caffeine · Helped
LOTS of caffeine 🙃
In context ↗ - sitting down and pacing at work · Helped
i sit down for whatever little time i can get at work ... it has made it bearable
In context ↗ - stretching · Helped
sit whenever i can with some stretching which helps a little
In context ↗ - vaping · Helped
Also ive picked up vaping 💀😭 which makes me wake up if i get sleepwalking tired just enough to survive
In context ↗ - creatine · Helped
I dont experience any mental boost from it (tried doses up to 15g) but it does help slightly with physical work
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| 2025-01-30 | relying on lots of caffeine to get work doneLOTS of caffeine 🙃In context ↗ | Mild | |
| 2025-08-22 | sitting whenever possible and working smart at work made it bearablei sit down for whatever little time i can get at work. try to work smart so i can do my job in as little effort as possible. it has made it bearable but im still strugglingIn context ↗ | Mild | |
| 2025-09-17 | creatine helps slightly with physical workI dont experience any mental boost from it (tried doses up to 15g) but it does help slightly with physical workIn context ↗ | Mild | Creatine |
Symptoms mentioned
Their words about their symptoms
- Sleep problems
ive "sleepwalked" in a warehouse job a few times anyway when i had some worse sleep days
In context ↗