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Long COVID Severe → much better

Couch- and housebound with long COVID, now semi-functional after CFS Recovery Academy

Condition
Long COVID
At worst
Severe (mostly bedbound)
Ill before improving or writing
Not stated
Last post
Aug 2025
In their words
  • Condition: Long COVIDr/covidlonghaulers In context ↗
  • At worst: SevereI signed up to the Academy membership option back in May when I was couch/housebound. In context ↗
  • Now: Much betterAfter a few weeks I was able to leave the house on a daily basis and I’ve slowly built up from there to now be semi-functional In context ↗
Read from 3 of their posts and comments; links to the 3 this page draws on

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Summary

A person with long COVID who was couch- and housebound around May 2025 joined the CFS Recovery Academy program; after a few weeks they could leave the house daily and by late August 2025 had built slowly to being semi-functional, with full function in sight. They credit the program and community, and earlier used Primal Trust and CFS Health to find a baseline and start being more active.

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Asking aboutGrove 48402’s story

What they tried

Their words about each treatment
  • CFS Health · HelpedCFS Health is another company that has really helped with finding my baseline so that I can start being more active. In context ↗
  • Primal Trust · HelpedI’ve just started using the platform Primal Trust ... I’m already starting to feel better In context ↗
  • Lightning Process · Not saidIf I hadn’t already spent money on the ‘Lightning Process’ a few months earlier In context ↗
  • CFS Recovery · Helped a lotAfter a few weeks I was able to leave the house on a daily basis and I’ve slowly built up from there to now be semi-functional In context ↗

Approaches: Brain retraining · Pacing

Their path

Very severeSevereModerateMildNear normalRecovered

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
2024-10-12started Primal Trust and began to feel betterI’ve just started using the platform Primal Trust ... I’m already starting to feel better In context ↗Not statedBrain retraining programs (DNRS, Gupta, ANS Rewire, Primal Trust)
May 2025couch/housebound before starting the CFS Recovery AcademyI signed up to the Academy membership option back in May when I was couch/housebound. In context ↗Severe
2025-08-30able to leave the house daily and slowly built up to semi-functionalAfter a few weeks I was able to leave the house on a daily basis and I’ve slowly built up from there to now be semi-functional In context ↗MildBrain retraining programs (DNRS, Gupta, ANS Rewire, Primal Trust)

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