ME/CFS
Outcome unclear
ME/CFS, really ill at times during a move, now in own home using pacing
- Condition
- ME/CFS
- At worst
- Not stated
- Ill for
- Not stated
- Last post
- Jun 2018
In their words
- Condition: ME/CFS
it is quite normal when you are chronically ill to develop anxiety around things that make you feel worse
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
A Reddit user in r/cfs moved out of their mother's house into their own home two summers before June 2018. Even with help the move was incredibly difficult and they were really ill at times, but it took a long time and they got back to their usual level. They now live in their own house, and describe pacing as planned rest before and after events and doing a minimum of activity each day.
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What they tried
Also tried
Their words about each treatment
- pacing · Not said
another big part of pacing is planning in useful rest before and after events so you can do them
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were |
|---|---|---|
| — | chronically ill with CFS; timing not statedwhen you overdo things or do the wrong things you don't feel the extra symptoms until a day or two laterIn context ↗ | Not stated |
| two summers before June 2018 | moved out of mother's house into own homeEven with help it was incredibly difficult and I was really ill at timesIn context ↗ | Moderate |
| 2018-06 | back to usual level, living in own houseI got back to my usual level and now I live in my own house and that's greatIn context ↗ | Recovered |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
when you overdo things or do the wrong things you don't feel the extra symptoms until a day or two later
In context ↗