Bedbound with long COVID, now much better after a long COVID centre and rest
- Condition
- Long COVID
- At worst
- Very severe (bedbound, unable to do basic care)
- Ill before improving or writing
- Not stated
- Last post
- Sep 2024
In their words
- Condition: Long COVID
especially not looking for an answer to healing my LC
In context ↗ - At worst: Very severe
could barely move anymore ... was completely bedbound
In context ↗ - Now: Much better
I am not cured at all, but I can do something, go out for short walks and stuff. ... My condition has improved a lot since I take it.
- Began after: COVID
especially not looking for an answer to healing my LC, anymore
Read from 10 of their posts and comments; links to the 7 this page draws on
Summary
Lynx 60338, in Germany, developed long COVID and became completely bedbound, convinced of dying within weeks around late 2022. Six months in a long COVID centre, with antidepressants that calmed the fear of dying, plus rest, magnesium, vitamin C and probiotics, took them from bedbound to working 2-3 hours a day; brain retraining also helped. They were not cured and could only go for short walks as of late 2023, and in 2024 reported that 0.6 mg Abilify improved things further.
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What they tried
What they credit
Also tried
Their words about each treatment
- Mirtazapine · Helped
15mg Mirtazapine did it for me. Tiltrated from 7.5mg.
In context ↗ - Bupropion (Wellbutrin) · Helped
I take Wellbutrin myself, it helped me pretty well, but I had to dose down to 150mg a day.
In context ↗ - Magnesium · Helped
100mg of Magnesium I take right before sleep, which helps to relax more.
In context ↗ - Vitamin C · Helped
I also took some supplements which I think helped me recover, like magnesium, vitamin c and probiotics.
In context ↗ - brain retraining · Helped
Basically brain retraining, trying to see stuff more positively.
In context ↗ - rest during hospital stay · Helped
what helped me most was that I could rest a lot and food and stuff was prepared for me
In context ↗ - CBT · No change
they pushed quite a lot as they wanted to get rid of me, doing lot of gymnastics, CBT, ergotherapy
In context ↗ - Abilify · Helped a lot
My condition has improved a lot since I take it. I am taking 0.6mg.
In context ↗
Approaches: Brain retraining · Other antidepressants · Other drugs and medicines · Radical rest · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| — | long COVID with severe insomnia, before the worst pointhad massive insomnia before Bupropion as well.In context ↗ | Not stated | |
| late 2022 | convinced of dying within weeks, could barely moveI was 99% sure I would die within the next 3-4 weeks, I could barely move anymore.In context ↗ | Very severe | |
| 2023-06-05 | from bedbound to working a few hours a day after supplements and brain retrainingSince two months or so, my state has improved massively. Basically from bed bound to be able to work like 2-3h a day.In context ↗ | Moderate | |
| 2024-09-06 | improved a lot on low-dose Abilify, short walks possibleMy condition has improved a lot since I take it. I am taking 0.6mg.In context ↗ | Mild | Low-dose Abilify / aripiprazole |
Adverse events
- Bupropion (Wellbutrin)“it also has insomnia as side effect” In context ↗ Insomnia from treatment
- Mirtazapine (Remeron), Bupropion (Wellbutrin)“When I took 300mg, I had various side-effects, especially sleeplessness and I felt like doped all the time.” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Sleep problems
So not sure whether my sleeplessness comes from LC or Bupropion, now.
In context ↗ - Anxiety & low mood
getting rid of this constant thought in dying soon, and so helped me to have more capacity for healing
In context ↗ - Muscle weakness
I could barely move anymore
In context ↗
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