ME/CFS
Moderate → no benefitIll for 7 years
Bedbound with ME/CFS, no improvement from supplements
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill for
- 7 years
- Last post
- Jul 2024
In their words
- Condition: ME/CFS
Dx ME/CFS when I was 21 following an EBV infection at 18.
In context ↗ - At worst: Moderate
mild-moderate CFS, I am only able to work 4 days a week ... when not working I am bed bound with limited self care ability
In context ↗ - Now: No benefit
This worsened after I had shingles 1 year ago.
In context ↗ - Began after: glandular fever or EBV
following an EBV infection at 18
Read from 1 of their posts and comments; links to the one this page draws on
Summary
A 25-year-old diagnosed with ME/CFS at 21, three years after an EBV infection at 18. They worked four days a week out of necessity and were bedbound with limited self-care otherwise. A supplement regime including magnesium, inositol, reishi, cetirizine, a probiotic, zinc and curcumin made a small difference to some symptoms. Recurring chest and sinus infections worsened after shingles a year earlier.
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What they tried
Also tried
Their words about each treatment
- magnesium glycinate · Not said
magnesium glycinate
In context ↗ - inositol · Not said
inositol (pcos)
In context ↗ - reishi · Not said
reishi (adaptogen)
In context ↗ - citerizine · Not said
citerizine (antihistamine for allergies)
In context ↗ - zinc · Not said
zinc (trialling for skin health in relation to PCOS)
In context ↗ - turmeric/curcumin · Not said
turmeric/curcumin (have been trialling, not sure has made any difference on inflammation)
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were |
|---|---|---|
| age 18 | EBV infection, ME/CFS diagnosed at 21Dx ME/CFS when I was 21 following an EBV infection at 18.In context ↗ | Not stated |
| 1 year ago | shingles, after which recurring infections worsenedThis worsened after I had shingles 1 year ago.In context ↗ | Not stated |
| 2024-07-06 | working four days a week, bedbound otherwiseI am only able to work 4 days a week (and only because I have no choice or I would be homeless)In context ↗ | Moderate |
Symptoms mentioned
Their words about their symptoms
- Flu-like symptoms
every 1-2 months I am catching colds, not COVID, but chest & sinus infections
In context ↗