Long COVID
Severe → no benefitIll for 1 year
Bedbound on many days with long COVID and dysautonomia, no improvement a year on
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill for
- 1 year
- Last post
- Jul 2026
In their words
- Condition: Long COVID
If anyone has dealt with pots/dysautomia from covid please tell me anything that has helped you.
In context ↗ - At worst: Severe
25f, bed bound alot of days.
In context ↗ - Now: No benefit
This has caused me such depression and I miss my old life, I need it back or at least to feel like i can go for a walk without dying.
In context ↗ - Began after: COVID
pots/dysautomia from covid
Read from 1 of their posts and comments; links to the one this page draws on
Summary
A 25-year-old woman has been ill for about a year with POTS and dysautonomia that followed COVID-19; she is bed bound on many days and misses her old life. Medications are not an option for her because of a severe adverse reaction. The illness has brought depression, and her goal is to walk again without feeling she is dying.
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Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 12 months after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| about a year before 2026-07-26 | POTS/dysautonomia after COVID-19If anyone has dealt with pots/dysautomia from covidIn context ↗ | Not stated |
| 2026-07-26 | bed bound on many days, no treatment yet25f, bed bound alot of days.In context ↗ | Severe |
| 2026-07-26 | still struggling, asking for POTS tipsim struggling. 25f, bed bound alot of days.In context ↗ | Severe |
Symptoms mentioned
Their words about their symptoms
- POTS & dysautonomia
dealt with pots/dysautomia from covid
In context ↗ - Anxiety & low mood
This has caused me such depression
In context ↗