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Long COVID Severe → no benefitIll for 5 years

Mostly bedridden with long COVID, tried ivabradine for POTS

Condition
Long COVID
At worst
Severe (mostly bedbound)
Ill for
5 years
Last post
Feb 2025
In their words
  • Condition: Long COVIDIt sounds like Long Covid. Ive been sick since early 2020 after contracting Covid and am mostly bed-ridden now. In context ↗
  • At worst: Seveream mostly bed-ridden now In context ↗
  • Now: No benefitIve been sick since early 2020 after contracting Covid and am mostly bed-ridden now In context ↗
  • Began after: COVIDIve been sick since early 2020 after contracting Covid In context ↗
Read from 1 of their posts and comments; links to the one this page draws on

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Summary

Has been ill since early 2020 after contracting COVID, and by February 2025 was mostly bedridden with long COVID. They called ivabradine (Corlanor) a game changer when diagnosed with POTS and dysautonomia. They had been on a long COVID clinic waiting list for over six months and were due to be seen in a few weeks, and said long COVID and ME/CFS groups kept them sane and, at their lowest, alive.

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What they tried

Their words about each treatment
  • Ivabradine (Corlanor) · Helped a lotIvabradine (Corlanor) was a game changer when I was diagnosed with POTS and dysautonomia. In context ↗

Their path

They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happenedWhere they wereAfter
early 2020COVID-19 infection; illness beganIve been sick since early 2020 after contracting Covid In context ↗Not stated
—ivabradine after POTS and dysautonomia diagnosisIvabradine (Corlanor) was a game changer when I was diagnosed with POTS and dysautonomia In context ↗Not statedIvabradine
2025-02-11mostly bedriddenam mostly bed-ridden now In context ↗Severe

Symptoms mentioned

Their words about their symptoms
  • POTS & dysautonomiaI was diagnosed with POTS and dysautonomia In context ↗
  • Anxiety & low moodThey have kept me sane and if I'm being honest alive when I felt so alone In context ↗

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