ME/CFS, mild, improved with supplements and LDN, then relapsed to moderate after activity
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- Not stated
- Last post
- Jun 2026
In their words
- Condition: ME/CFS
I’ve only ever had mild ME/CFS
In context ↗ - At worst: Moderate
I went from mild to moderate/moderate-severe and got stuck there for several months
In context ↗ - Now: Relapsed
eventually climbed back to mild. Then this April I saw my mother and brother for the whole day and it happened again. Moderate currently…
In context ↗
Read from 9 of their posts and comments; links to the 5 this page draws on
Summary
A nurse with mild ME/CFS, off work almost two years, said they were improving gradually with supplements, vagal nerve stimulation and low-dose naltrexone but still crashed after pronounced physical or social activity. Nausea and digestive problems that had caused weight loss settled, and pulsatile tinnitus cleared. Socialising three days running dropped them from mild to moderate/moderate-severe for several months, and a family day in April 2026 did the same; they were moderate at the time of posting.
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What they tried
What they credit
Also tried
Their words about each treatment
- low dose naltraxone · Helped
have been improving gradually through all sorts of therapies (supplements, vagal nerve stim, low dose naltraxone, etc)
In context ↗ - supplements · Helped
improving gradually through all sorts of therapies (supplements, vagal nerve stim, low dose naltraxone, etc) ... I take so many mood boosting supplements
- cetirizine · Helped
Antihistamines help with that symptom and a few others, I take cetirizine specifically.
In context ↗
Approaches: Vagus nerve stimulation
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| onset | ME/CFS onset, only ever mildI’ve only ever had mild ME/CFSIn context ↗ | Mild |
| — | dropped from mild to moderate/moderate-severe after three days of socialising, including a busy restaurantI went from mild to moderate/moderate-severe and got stuck there for several monthsIn context ↗ | Moderate |
| — | gradual improvement back to mild with supplements, vagal nerve stimulation and low-dose naltrexoneeventually climbed back to mildIn context ↗ | Mild |
| April 2026 | crashed after spending a whole day with mother and brotherThen this April I saw my mother and brother for the whole day and it happened again.In context ↗ | Moderate |
| 2026-06-03 | still moderate after the April crashModerate currently…In context ↗ | Moderate |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I can do normal daily stuff without issue and only crash from more pronounced physical or social activities
In context ↗ - Gut problems
the constant and sometimes aggressive bouts of nausea and digestive motility issues. Since I stopped having that
In context ↗ - Tinnitus
I had pulsatile tinnitus in the first ~8 months of my ME and then it went away and never came back
In context ↗ - Temperature regulation
a generalized "being cooked from the inside" feeling that somehow doesn’t translate into fever, though my skin is burning to the touch
In context ↗
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