ME/CFS
No benefitIll for 55 yearsNeeds ongoing treatment
Fatigue with ME/CFS, now trying something for adrenal issues as a last resort
- Condition
- ME/CFS
- At worst
- Not stated
- Ill for
- 55 years
- Last post
- Jun 2026
In their words
- Condition: ME/CFS
I have suffered fatigue since 1971 after picking up the giardia parasite
In context ↗ - Now: No benefit
I have always know I have never felt the same ... these just keep me going somewhat
In context ↗ - Began after: a bacterial or tick-borne infection
after picking up the giardia parasite
Read from 1 of their posts and comments; links to the one this page draws on
Summary
Tide 40000 reported fatigue starting in 1971, after picking up the giardia parasite, which went undiagnosed and untreated for two years. They said they had never felt the same since. Alternative therapies cost them a fortune and only kept them going somewhat. Recently, after doing a lot of research, they concluded they have adrenal cortex issues with low daytime cortisol and are taking something for that as a last resort.
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What they tried
Also tried
alternative therapies· Helpedsomething for adrenal cortex issues / low cortisol· Not said
Their words about each treatment
- alternative therapies · Helped
I have spent a fortune on alternative therapies these just keep me going somewhat.
In context ↗ - something for adrenal cortex issues / low cortisol · Not said
I now know I have adrenal cortex issues and low cortisol during the day so I am taking something for that.
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened |
|---|---|
| 1971 | picked up the giardia parasite; fatigue began and went untreated and undiagnosed for two yearsI have suffered fatigue since 1971 after picking up the giardia parasiteIn context ↗ |
| 2026-06-03 | still fatigued; alternative therapies keep them going somewhat; taking something for low daytime cortisolthese just keep me going somewhatIn context ↗ |