ME/CFS with car rides and TV impossible, much better after fasting and lifestyle changes
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- Not stated
- Last post
- Mar 2019
In their words
- Condition: ME/CFS
I've seen significant progress in my condition after treating my CFS as autonomic dysfunction
In context ↗ - At worst: Severe
my body couldn't handle the stress of even being in a car or watching TV for months.
In context ↗ - Now: Much better
I've seen significant progress in my condition ... Correcting my diet, sleep and circulation problems were huge to my ongoing recovery
Summary
They described months when their body could not handle a car ride or even watching TV, with ruined sleep and hormones out of whack. They reported significant progress after treating their CFS as autonomic dysfunction, and credited cutting everything out of their life, starting with a week-long fast, then fixing diet, sleep and circulation, for ongoing recovery. A high-altitude trip needed heavy pacing but they adapted.
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What they tried
What they credit
Also tried
Their words about each treatment
- pacing · Helped
pacing was enough for me
In context ↗ - treating my CFS as autonomic dysfunction · Helped a lot
I've seen significant progress in my condition after treating my CFS as autonomic dysfunction
In context ↗ - cut literally everything out of my life · Helped
I didn't start getting better until I cut literally everything out of my life and restarted from scratch
In context ↗ - a week long fast · Helped
I didn't start getting better until I cut literally everything out of my life and restarted from scratch, starting with a week long fast.
In context ↗ - Correcting my diet · Helped a lot
Correcting my diet, sleep and circulation problems were huge to my ongoing recovery
In context ↗
Approaches: Diet · Radical rest
Their path
What they say at each step doesn’t fit the worst point or outcome above on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened |
|---|---|
| — | months unable to tolerate even a car ride or watching TVmy body couldn't handle the stress of even being in a car or watching TV for monthsIn context ↗ |
| 2018-07-24 | significant progress after treating CFS as autonomic dysfunction; pacing enough to manage a high-altitude tripI've seen significant progress in my condition after treating my CFS as autonomic dysfunctionIn context ↗ |
| 2019-03-19 | ongoing recovery after cutting everything out, a week-long fast, and fixing diet, sleep and circulationCorrecting my diet, sleep and circulation problems were huge to my ongoing recoveryIn context ↗ |
Symptoms mentioned
Their words about their symptoms
- POTS & dysautonomia
Those of us with POTS (including myself)
In context ↗ - Sleep problems
my sleep was ruined
In context ↗ - Post-exertional malaise
my body couldn't handle the stress of even being in a car or watching TV for months
In context ↗ - Anxiety & low mood
I've been physically and emotionally drained
In context ↗
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