Long COVID
Moderate → relapsedIll 10 months before improving or writing
Long COVID with POTS and vertigo, brief improvement then relapse; lorazepam helped a bit
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 10 months
- Last post
- Oct 2022
In their words
- Condition: Long COVID
Im 2 weeks into the 9th month of long covid.
In context ↗ - At worst: Moderate
I cant go out and exercise, i cant walk my dog. I cant cook and sitting in a chair doesnt help.
In context ↗ - Now: Relapsed
I have had this 24 hours a day since february. Physiotherapy has helped a bit.
In context ↗ - Began after: COVID
I was able to eat during covid.
In context ↗
Read from 14 of their posts and comments; links to the 10 this page draws on
Summary
A long COVID patient who fell ill around December 2021 had a brief improvement before their original symptoms returned in July 2022; by nine months they were still unwell, with POTS, and 24-hour vertigo dating from February 2022. They could not walk their dog, cook or exercise, and a short walk around the block left them dizzy enough to need a lift home. Lorazepam helped somewhat and physiotherapy helped a bit, but the dizziness persisted.
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What they tried
Also tried
meal replacement drinks like Boost or Ensure· Helpedlorazepam· Helpedstaying in bed· Helpedphysiotherapy· Helpedbeta blockers· Worsemarijuana edible· Not said
Their words about each treatment
- meal replacement drinks like Boost or Ensure · Helped
I had to buy meal replacement drinks like Boost or Ensure to keep my calories up.
In context ↗ - lorazepam · Helped
But i also take lorazepam 3 times a day which definitely helps with lowering it.
In context ↗ - beta blockers · Worse
I dont respond well to beta blockers.
In context ↗ - marijuana edible · Not said
So my dad gave me a marijuana edible thinking it would help.
In context ↗ - staying in bed · Helped
only thing that kind of helps right now is lorazepam and staying in bed.
In context ↗ - physiotherapy · Helped
Physiotherapy has helped a bit.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 6 months after onset: the story doesn’t say how ill they were before that. 2 steps say too little to place on the scale and are only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| around December 2021 | COVID-19 infection, followed by long COVIDI was able to eat during covid.In context ↗ | Not stated |
| February 2022 | 24/7 vertigo and dizziness beganI have had this 24 hours a day since february.In context ↗ | Not stated |
| June to early July 2022 | a good stretch; could walk around the block without trouble2 weeks ago I was able to walk around the block with no problem. My heart wasnt even pounding much if at all.In context ↗ | Mild |
| 2022-07-23 | crashed on a walk around the block; original symptoms returnedI tried going for a walk around the block and my eyes couldn't focus on all the trees and sky and i got so dizzy i had to find a bench to sit downIn context ↗ | Moderate |
| 2022-10-02 | still ill with POTS and constant vertigo; physiotherapy gave a little helpI have had this 24 hours a day since february. Physiotherapy has helped a bit.In context ↗ | Moderate |
Adverse events
- Beta-blockers (unspecified)“I dont respond well to beta blockers.” In context ↗ Side effects
- “my dad gave me a marijuana edible thinking it would help. I never had one before. Apparently it was too much.” In context ↗ ER visit
Symptoms mentioned
Anxiety & low moodGut problemsHeadaches & migraineHeart symptoms & palpitationsLoss of smell or tastePOTS & dysautonomiaVision problems
Their words about their symptoms
- POTS & dysautonomia
Pots is absolutely irritating me. It controls everything i do.
In context ↗ - Heart symptoms & palpitations
Heart spikes for me when standing at certain times of the day.
In context ↗ - Vision problems
my eyes couldn't focus on all the trees and sky
In context ↗ - Headaches & migraine
If i scrub my head i get dizzy through the eyes and head pressure.
In context ↗ - Anxiety & low mood
I just feel like crying all day now
In context ↗ - Gut problems
Chewing foods made me nauseous.
In context ↗ - Loss of smell or taste
I got my taste back 5 weeks after my first symptom.
In context ↗