ME/CFS
No benefitIll for 16 years
ME/CFS worsening to constant exhaustion, with nothing helping
- Condition
- ME/CFS
- At worst
- Not stated
- Ill for
- 16 years
- Last post
- Nov 2021
In their words
- Condition: ME/CFS
I’ve had CFS since 2005
In context ↗ - Now: No benefit
lately it has rapidly gone downhill
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
Acorn 90876 had had CFS since 2005. Early on, ADHD medication from their doctor helped, but after moving they could not find anyone to prescribe it. By late 2021 their condition had rapidly worsened and they were exhausted for no reason, with nothing taken for energy having any effect lately. In 2018 they donated blood weekly for a CFS study at UAB.
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What they tried
Also tried
adhd meds· Helpedeverything possible for energy· No change
Their words about each treatment
- adhd meds · Helped
my doc gave me adhd meds, which did help
In context ↗ - everything possible for energy · No change
I’ve taken everything possible for energy & felt nothing lately.
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | After |
|---|---|---|
| 2005 | developed CFSI’ve had CFS since 2005In context ↗ | |
| 2005 | ADHD medication from their doctor helpedWhen I 1st got CFS my doc gave me adhd meds, which did help.In context ↗ | Stimulants (unspecified) |
| 2021-11-16 | rapidly went downhill and was exhausted for no reasonlately it has rapidly gone downhill ... Right now I’m just exhausted for no reason.In context ↗ |