Miruvor
Sign up
ME/CFS Outcome unclear

ME/CFS crash after jumping jacks, almost unable to walk, still scared to accept illness

Condition
ME/CFS
At worst
Not stated
Ill for
Not stated
Last post
May 2023
In their words
  • Condition: ME/CFSYoure not the first person ive seen describe this feeling of "dying" with cfs. Ive experienced that feeling multiple times as well. In context ↗
Read from 3 of their posts and comments; links to the 3 this page draws on

Request to remove this story

Summary

A Reddit user with ME/CFS who uses a cane sometimes and reports having 'good moments.' While in denial about the illness they forced themselves to do a bunch of jumping jacks, crashed hard and almost lost the ability to walk during the crash. They say they have felt a 'dying' feeling with CFS several times and are still scared to accept the illness is real.

Ask Miruvor AI

Asking aboutCove 19179’s story

What they tried

Also tried

cane· Helpedjumping jacks· Much worse
Their words about each treatment
  • cane · HelpedIi use a cane sometimes and though i feel awkward and under scrutiny using it, it helps. In context ↗
  • jumping jacks · Much worseI once was in denial so hard i forced myself to do a bunch of jumping jacks...I crashed hard and almost lost my ability to walk during the crash. In context ↗

Their path

They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happenedWhere they were
—living with ME/CFSYoure not the first person ive seen describe this feeling of "dying" with cfs. In context ↗Not stated
2023-05-21crashed hard after forcing themselves through jumping jacksI once was in denial so hard i forced myself to do a bunch of jumping jacks...I crashed hard and almost lost my ability to walk during the crash. In context ↗Severe
2023-05-21still ill, uses a cane sometimes, has good momentsive had some good moments today. In context ↗Not stated

Symptoms mentioned

Their words about their symptoms
  • Post-exertional malaiseI crashed hard and almost lost my ability to walk during the crash. In context ↗
  • Muscle weaknessalmost lost my ability to walk during the crash In context ↗

Ask Miruvor AI

Asking aboutCove 19179’s story

A little hope, every Sunday

New recovery stories and data-driven research on ME/CFS and long COVID. Ideas worth considering, and the evidence behind them.

Free · Unsubscribe anytime