ME/CFS with relapses: improved, then relapsed, unemployed and struggling to feed self
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- Not stated
- Last post
- Nov 2022
In their words
- Condition: ME/CFS
God I had cfs from post viral too - mine was originally from taking a vaccination.
In context ↗ - At worst: Moderate
In November this year I am unemployed, having spent 7 months in the most terrible of relapses, at points struggling to feed myself.
In context ↗ - Now: Relapsed
in April this year I had two jobs, was cooking for myself and living independently. In November this year I am unemployed
In context ↗ - Began after: a vaccination
God I had cfs from post viral too - mine was originally from taking a vaccination.
In context ↗
Read from 11 of their posts and comments; links to the 6 this page draws on
Summary
Lake 63609 traced their CFS to a vaccination. By early 2020 they were doing very gentle exercises and had recently had a six-month relapse. In April 2022 they had two jobs, cooked for themselves and lived independently, but by November 2022 a seven-month relapse left them unemployed and at points struggling to feed themselves. Cannabis had helped regulate sleep; the Optimum Health Clinic gave minimal benefit and was expensive.
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What they tried
Also tried
Their words about each treatment
- very gentle exercises · Not said
I do very gentle exercises (not in great shape) but try to do one set before bed each day.
In context ↗ - cannabis · Helped
I personally found for a long time cannabis to be enormously helpful for me. Helped regulate my sleep
In context ↗ - optimum health · Helped
Avoid optimum health. I went, minimal benefit & ready expensive
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 3 steps say too little to place on the scale and are only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| — | CFS onset after vaccinationGod I had cfs from post viral too - mine was originally from taking a vaccination.In context ↗ | Not stated |
| 2020-02-24 | six-month relapsemy ex broke up with me essentially after a 6-month relapse that was horrificIn context ↗ | Not stated |
| 2020-06-19 | cannabis helped sleep and social activityI personally found for a long time cannabis to be enormously helpful for me. Helped regulate my sleepIn context ↗ | Not stated |
| April 2022 | working two jobs, cooking and living independentlyin April this year I had two jobs, was cooking for myself and living independently.In context ↗ | Mild |
| November 2022 | seven-month relapse; unemployed and struggling to feed myselfIn November this year I am unemployed, having spent 7 months in the most terrible of relapses, at points struggling to feed myself.In context ↗ | Moderate |
Symptoms mentioned
Their words about their symptoms
- Sleep problems
Helped regulate my sleep
In context ↗