ME/CFS
Moderate → somewhat better
ME/CFS with unrefreshing sleep and PEM crashes, now slightly better on unnamed things
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- Not stated
- Last post
- May 2026
In their words
- Condition: ME/CFS
Like my PEM crashes are slightly less bad or arent triggered as much.
In context ↗ - At worst: Moderate
playing on the couch or in bed! It’s been a life saver when it comes to gaming, since it’s stimulating but doesn’t drain me as much since I’m laying down.
In context ↗ - Now: Somewhat better
These can help, I’m on a few, but it doesn’t get rid of symptoms completely. It’s been more like… a cushioning effect. Like my PEM crashes are slightly less bad or arent triggered as much.
In context ↗
Read from 5 of their posts and comments; links to the 4 this page draws on
Summary
They describe unrefreshing sleep, lying down during the day and PEM crashes that can stop them playing games. Handheld games help them pace, while crafts and journaling keep them occupied. By May 2026 they were on a few unnamed things, which they said gave a cushioning effect: PEM crashes were slightly less bad or less easily triggered, and symptoms were slightly better, though not gone.
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What they tried
Also tried
medications/supplements from the Mayo list· Helpedvideo games· Helped
Their words about each treatment
- medications/supplements from the Mayo list · Helped
These can help, I’m on a few, but it doesn’t get rid of symptoms completely. It’s been more like… a cushioning effect. Like my PEM crashes are slightly less bad or arent triggered as much.
In context ↗ - video games · Helped
Video games have been a lifesaver, but I’ve also gotten into knitting and crafting of various sorts when I can.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2024-08-31 | unrefreshing sleep and lying down during the daymornings are just a bit less nice when sleep doesn’t help energy much ... I’m still laying down and my energy is the sameIn context ↗ | Moderate |
| 2026-05-28 | slightly better symptoms and less bad PEM crashes on unnamed medications/supplementsmy PEM crashes are slightly less bad or arent triggered as much ... symptoms to be slightly better in small waysIn context ↗ | Moderate |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
my PEM crashes are slightly less bad or arent triggered as much
In context ↗ - Sleep problems
mornings are just a bit less nice when sleep doesn’t help energy much
In context ↗