Unable to work for a year with long COVID, now a bit better on a low-energy diet
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 3.5 years
- Last post
- Oct 2026
In their words
- At worst: Moderate
lost any ability to work then for like a year ... even though I had some weeks bedbound
In context ↗ - Now: Somewhat better
I'm starting to feel a bit better out of loosing weight
In context ↗ - Began after: COVID
I was infected with covid in april 2023
Read from 6 of their posts and comments; links to the 4 this page draws on
Summary
They date their illness to a COVID infection in April 2023 and a September 2023 reinfection that left them unable to work for about a year. Working remotely through 2025 worsened them, so from January 2026 they stopped work and all exercise to rest. Losing 5 kg on a low-energy diet with a glucose monitor left them feeling a bit better by October 2026, though still disabled and crash-prone.
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What they tried
What they credit
Also tried
Their words about each treatment
- elliptical bike · Not said
I can do like 30minutes or one hour of elliptical bike because it's repetitive enough
In context ↗ - rock climbing sessions · Much worse
I kept doing rock climbing sessions and it became worse and worse by the year
In context ↗ - yoga or stretching · Worse
even stuff like yoga or stretching can triggers me too
In context ↗ - pacing (stopping when a trigger signal appears) · Helped
if an exercise triggers this I stop immediately for the day and the next day is usually okay
In context ↗ - weight-loss diet (green beans and potatoes) · Helped
I'm starting to feel a bit better out of loosing weight
In context ↗ - dexcom device · Not said
I decided to pay for a dexcom device for a year to reeducate myself and see how food impact my blood sugars
In context ↗ - rest (stopped all exercise and stopped working) · Helped
I didn't get a full crash since a few months
In context ↗
Approaches: Pacing · Radical rest
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| April 2023 | COVID infection, very ill for 3 weeks then slow partial recoveryI was infected with covid in april 2023, got really bad for 3 weeks then slowly recoveredIn context ↗ | Moderate |
| September 2023 | COVID reinfection, unable to work for about a yeargot reinfected in september 2023 and lost any ability to work then for like a yearIn context ↗ | Moderate |
| 2024 | kept rock climbing and crashed weekly, baseline fell and muscle weakness appearedI kept doing rock climbing sessions and it became worse and worse by the year, basically I triggered a crash by each week and got a little bit worseIn context ↗ | Moderate |
| 2025 | worked remotely full-time for a year but could do nothing else and felt it set them backworked remote a full year in 2025 without being able to do anything else, I think it made me worseIn context ↗ | Mild |
| January 2026 | stopped all exercise and work to rest and avoid crashesnow I'm trying to recover since january 2026 with some rest and trying not to get crash. I stopped all exercise and stopped workingIn context ↗ | Moderate |
| October 2026 | slight improvement after losing weight on a low-energy diet with a glucose monitorI'm starting to feel a bit better out of loosing weight, I don't think it's uselessIn context ↗ | Moderate |
Symptoms mentioned
Their words about their symptoms
- Temperature regulation
I totally relate to higher body temperature when triggered
In context ↗ - Muscle weakness
ended up feeling muscle weakness
In context ↗
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