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ME/CFS Outcome unclear

Weak and tired with ME/CFS and POTS; posture corrector made a difference to posture

Condition
ME/CFS
At worst
Not stated
Ill for
Not stated
Last post
May 2021
In their words
Read from 3 of their posts and comments; links to the 3 this page draws on

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Summary

A Reddit user with CFS and POTS posted in May 2021 that a treatment did not help and left them weak and tired, despite high hopes. They described muscle weakness as one of their worst CFS symptoms and said magnesium made it much worse, so they could not take it. A posture corrector worn most of the time made a significant difference to their poor posture.

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What they tried

Their words about each treatment
  • Mestinon · WorseIt didn’t help me despite the fact I have really bad POTS and CFS. Just made me weak and tired but I had high hopes. In context ↗
  • posture corrector · HelpedMine is really bad too and I got a posture corrector that I wear pretty much all the time and I’ve noticed a significant difference. In context ↗
  • magnesium · Much worseOne of my worst CFS symptoms is muscle weakness and magnesium makes it much worse. I can’t take it. In context ↗

Their path

They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happened
—living with CFS and POTSI have really bad POTS and CFS In context ↗
2021-05-21still ill; muscle weakness a main symptomOne of my worst CFS symptoms is muscle weakness and magnesium makes it much worse. In context ↗

Adverse events

  • Mestinon / pyridostigmine“It didn’t help me despite the fact I have really bad POTS and CFS. Just made me weak and tired but I had high hopes.” In context ↗ Made symptoms worse
  • Magnesium“One of my worst CFS symptoms is muscle weakness and magnesium makes it much worse. I can’t take it.” In context ↗ Made symptoms worse

Symptoms mentioned

Their words about their symptoms
  • Muscle weaknessOne of my worst CFS symptoms is muscle weakness and magnesium makes it much worse. In context ↗
  • POTS & dysautonomiaIt didn’t help me despite the fact I have really bad POTS and CFS. In context ↗

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