All but bedridden with ME/CFS, a little better on methylphenidate and armodafinil
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- Not stated
- Last post
- May 2022
In their words
- Condition: ME/CFS
Sans methylphenidate and armodafinil, I would be all but bedridden.
In context ↗ - At worst: Severe
Sans methylphenidate and armodafinil, I would be all but bedridden.
In context ↗ - Now: Somewhat better
They still only give me 4-6 good hours a day (wherein the value of "good" varies greatly), but it's better than being an utter zombie.
In context ↗
Summary
Horizon 81305 said that without methylphenidate and armodafinil they would be all but bedridden, and that the stimulants gave them only 4-6 good hours a day, better than being an utter zombie. They said the drugs generated real energy and focus, and that skipping a day meant no good hours at all. They noted that stimulants help some patients and make others worse. Onset and duration of the illness were not stated.
Ask Miruvor AI
What they tried
What they credit
Their words about each treatment
- methylphenidate · Helped a lot
Sans methylphenidate and armodafinil, I would be all but bedridden.
In context ↗
Approaches: Stimulants
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| — | all but bedridden without stimulantsSans methylphenidate and armodafinil, I would be all but bedridden.In context ↗ | Severe | |
| 2022-04-18 | stimulants left them with 4-6 good hours a dayThey still only give me 4-6 good hours a dayIn context ↗ | Moderate | Methylphenidate (Ritalin, Concerta) |
| 2022-05-02 | still finding stimulants useful, no good hours on skipped daysSome, like me, find stimulants useful.In context ↗ | Moderate |
Ask Miruvor AI
Similar stories
-
Severe ME/CFS, almost bedridden, now somewhat better with Mounjaro and mestinon
A UK woman ill with CFS/ME for over 25 years and severe for about ten, almost completely bedridden and needing help washing, with POTS, a sleep disorder, ADHD and GAD. Stimulants gave her roughly four hours of work a day at the cost of crashing most days.…
-
Not enough detail to draw a path
ME/CFS for 25 years with crash cycles, somewhat better with Provigil
Ridge 24487 has had ME/CFS (CFIDS) for about 25 years, with fibromyalgia and a damaged spine. Starting around six years in, three-day crash cycles slowly shortened and spaced out with help from family, doctors and physical and occupational therapy. Provigil…
-
ME/CFS, four-month bedbound stretch, now much better on midodrine and methylphenidate
Starling 35051 developed POTS in 2003 at 19, then inflammatory arthritis, CFS and fibromyalgia. The illness followed a relapsing-remitting course for over 20 years, with total remissions in 2004-05 and 2006-09 and a four-month bedbound stretch. Midodrine,…
-
ME/CFS for 15 years, over a year bedridden, somewhat better; antihistamines and PEA helped
Ill for about 15 years with ME, Moon 94974 later had a year and a half of long COVID during which they were bedridden for over a year. H1 and H2 antihistamines ended the migraines that came with eating, PEA and a CoQ10 formulation (CoQH-CF) gave noticeable…