Appetite loss with ME/CFS, now somewhat better with diet and medication
- Condition
- ME/CFS
- At worst
- Not stated
- Ill before improving or writing
- Not stated
- Last post
- Apr 2024
In their words
- Condition: ME/CFS
I'm being treated by an ME/CFS specialist that has been in business for half a century.
In context ↗ - Now: Somewhat better
Once I got these issues under control with diet/supplements and meds, a lot of symptoms greatly improved
In context ↗
Read from 5 of their posts and comments; links to the 4 this page draws on
Summary
Posting in r/cfs, Hill 71223 reported appetite suppression tied to mast cell and histamine issues, with past flares where they could not eat for days. They said diet, supplements and medications brought those issues under control and greatly improved many symptoms, including appetite. Nicotine patches made no difference, while stimulant medication helped overall but worsened crashes and anxiety.
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What they tried
What they credit
Also tried
Their words about each treatment
- diet · Helped
Once I got these issues under control with diet/supplements and meds, a lot of symptoms greatly improved
In context ↗ - nicotine patches · No change
Didn't make a difference for me tho.
In context ↗ - stimulant meds · Helped
Stimulants generally helped me though, but made crashes and anxiety worse.
In context ↗
Approaches: Diet
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | After |
|---|---|---|
| in the past | appetite suppression and histamine issues at their worst; flares with days without eatingThere have been flares where I couldn't eat for days in a rowIn context ↗ | |
| 2024-04-14 | mast cell/histamine issues brought under control; many symptoms and appetite improvedOnce I got these issues under control with diet/supplements and meds, a lot of symptoms greatly improvedIn context ↗ | |
| 2024-04-23 | on stimulant medication; generally helped but worsened crashes and anxietyStimulants generally helped me though, but made crashes and anxiety worse.In context ↗ | Stimulants (unspecified) |
Adverse events
- Stimulants (unspecified)“Stimulants generally helped me though, but made crashes and anxiety worse.” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Mast cell (MCAS) & allergies
My appetite supression is 100% related to mast cells and histamine issues
In context ↗ - Anxiety & low mood
made crashes and anxiety worse
In context ↗
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