Long COVID with liver pain and tremors, somewhat better after Benadryl and Pepcid
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 8 months
- Last post
- Oct 2023
In their words
- At worst: Mild
Haven’t really been able to exercise since being sick though. ... I can walk and I’m fine but if I exert myself any more than that I get tremors
- Now: Somewhat better
they have improved. ... I can walk and I’m fine but if I exert myself any more than that I get tremors so it makes it hard to exercise.
In context ↗
Read from 12 of their posts and comments; links to the 10 this page draws on
Summary
Became ill in early 2023, with abdominal pain near their liver and raised liver enzymes months later. Prednisone and Zithromax were followed within two days by severe liver pain, and they regretted taking prednisone as it made them worse. Benadryl and Pepcid helped over a few months, and their tremors eased, though by October 2023 they could walk but not jog or lift without feeling awful or getting tremors.
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What they tried
What they credit
Also tried
Their words about each treatment
- Zithromax · Worse
In hindsight I really regret taking that crap because it only made me worse.
In context ↗ - prednisone · Worse
I have already done that a couple of times and I swear it makes me worse and bothers my stomach
In context ↗ - vaccines · No change
Got the vaccines and haven’t helped anyways.
In context ↗ - benedryl · Helped
I have been taking both for a few months and they have really helped
In context ↗ - getting back to some exercise · Worse
I can walk fine but if I try to jog or lift at all I feel
In context ↗ - cymbalta · No change
They put me in cymbalta which did not help so I am weaning off of that
In context ↗
Approaches: H1 antihistamines · H2 blockers
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| early 2023 | severe liver pain two days after prednisone and ZithromaxI was sick and they though I had bronchitis and put me on that and within two days I had the severe liver pain.In context ↗ | Mild | |
| 2023-09 | Benadryl and Pepcid helpedI have been taking both for a few months and they have really helpedIn context ↗ | Mild | Diphenhydramine (Benadryl) |
| 2023-10-04 | tremors improved but still come on with exertion or stressI can walk and I’m fine but if I exert myself any more than that I get tremors so it makes it hard to exercise.In context ↗ | Mild |
Adverse events
- Azithromycin (Zithromax, Z-Pak)“put me on that and within two days I had the severe liver pain” In context ↗ Liver or kidney problems
- Azithromycin (Zithromax, Z-Pak)“In hindsight I really regret taking that crap because it only made me worse.” In context ↗ Made symptoms worse
- Corticosteroid pulses“I have already done that a couple of times and I swear it makes me worse” In context ↗ Made symptoms worse
- Corticosteroid pulses“and bothers my stomach so I’m going to try the nasal spray” In context ↗ Gut side effects
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I can walk and I’m fine but if I exert myself any more than that I get tremors so it makes it hard to exercise.
In context ↗ - Anxiety & low mood
I have also been pretty anxious just from not feeling well.
In context ↗ - Gut problems
I have pain where my liver is at. The pain has improved but there is still a dull pain there.
In context ↗
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