ME/CFS
Outcome unclearNeeds ongoing treatment
ME/CFS overdoing activity, pacing and stimulants help manage
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill for
- Not stated
- Last post
- Aug 2026
In their words
- Condition: ME/CFS
Sometimes I feel like I have a lot of spoona so I take up more activities and while doing them I feel good and right after ending it, I realized that I have overdone it
In context ↗ - At worst: Mild
Sometimes I feel like I have a lot of spoona so I take up more activities and while doing them I feel good and right after ending it, I realized that I have overdone it
In context ↗
Summary
Badger 50118 struggles with overdoing activity, realising only afterwards that a task was too much. They pace by cooking seated, using an Easi-Grip knife and anti-slip mat, and suggest sitting or leaning against the counter for dishwashing. They set vibration alarms to check in with their body. They describe stimulants as helping a lot, quietening head noise and improving proprioception so pacing is a little easier to manage.
Ask Miruvor AI
What they tried
Also tried
Their words about each treatment
- stimulants · Helped
Honestly for me it helps a lot. Without my stimulants I have a lot more going on in my head and stressing out over a lot of things. My proprioception is a lot better with my meds than without it.
In context ↗ - pacing · Helped
Generally what helps me most: Try to do everything seated or at least against something. I did not notice how much energy my body used just for standing up.
In context ↗ - interoception training · Helped
I am also training that. I am a lot better now with realizing that something is bad for me than before. I set little vibration alarms for checkins.
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were | After |
|---|---|---|---|
| — | ME/CFS, seen by an ME specialistI relate to you so much as I struggle with the aame thingIn context ↗ | Not stated | |
| 2026-08-27 | stimulants quieten head noise and improve proprioception, making pacing easierMy proprioception is a lot better with my meds than without it. So pacing is a little bit better to manage for myself than without it.In context ↗ | Mild | Stimulants (unspecified) |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
Sometimes I feel like I have a lot of spoona so I take up more activities and while doing them I feel good and right after ending it, I realized that I have overdone it.
In context ↗ - Anxiety & low mood
Without my stimulants I have a lot more going on in my head and stressing out over a lot of things.
In context ↗