ME/CFS
Outcome unclearIll for 42 years
ME/CFS long past seeking a diagnosis, LDN and huperzine-A work with drawbacks
- Condition
- ME/CFS
- At worst
- Not stated
- Ill for
- 42 years
- Last post
- Oct 2025
In their words
- Condition: ME/CFS
depression caused by ME/CFS
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
Having given up on doctors around 1983 and long past seeking a diagnosis, they report that LDN and huperzine-A are the supplements that work for them, though both cause problems: huperzine gives a runny nose and once triggered pancreatitis, and it clashes with trazodone. They use full-strength naltrexone for alcohol use disorder. Oxaloacetate seemed to be helping after a few days but is very expensive.
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What they tried
Their words about each treatment
- LDN · Helped
The ones that work for me are LDN and huperzine-A ... I use naltrexone at full strength for alcohol use disorder
In context ↗ - huperzine-A · Helped
The ones that work for me are LDN and huperzine-A, though I have problems with both
In context ↗ - trazodone · Not said
It also doesn't play nice with trazodone, which I take for sleep
In context ↗ - oxaloacetate · Helped
What seems to be working also is oxaloacetate, but I have only taken it for a few days so am waiting to see if the improvements I think I'm seeing are sustainable
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | After |
|---|---|---|
| around 1983 | ill and stopped seeking doctors for it in the 'yuppie flu' eraI gave up on doctors for this sometime around 1983 or so.In context ↗ | |
| 2025-10-13 | LDN and huperzine-A help; a few days into oxaloacetate with possible gainsWhat seems to be working also is oxaloacetate, but I have only taken it for a few days so am waiting to see if the improvements I think I'm seeing are sustainable.In context ↗ | Oxaloacetate |
Adverse events
- Huperzine A“huperzine causes a runny nose” In context ↗ Side effects
- Huperzine A“when I accidentally took too much - a pancreatitis incident.” In context ↗ Other
Symptoms mentioned
Their words about their symptoms
- Anxiety & low mood
likely brought on by depression caused by ME/CFS
In context ↗ - Sleep problems
trazodone, which I take for sleep
In context ↗