ME/CFS
Severe → no benefit
Mostly bedbound with ME/CFS, no improvement after aggressive rest
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill for
- years
- Last post
- Mar 2025
In their words
- At worst: Severe
forced to quit my job, mostly bedbound to the point he is carrying me to and from the toilet 50% of the time
In context ↗ - Now: No benefit
I’m currently at the lowest point I’ve been at in years
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
A Reddit user in r/cfs met their fiancé while already 'pretty deep in' the illness. After a crash they had to be honest about their physical state, and by March 2025 had quit their job and were mostly bedbound, with their fiancé carrying them to and from the toilet about half the time. They had just begun 'aggressive' rest for the first time and said being able to relax mentally helped during the bad flare-up.
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What they tried
Also tried
Their words about each treatment
- “aggressive” rest · Helped
I can mentally relax when I’m trying to rest my body which has made all the difference in this really bad flare up
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were |
|---|---|---|
| — | already ill and 'pretty deep in' when meeting fiancéI was pretty deep in when I met my fiance.In context ↗ | Not stated |
| — | crashed after pushing to do moreWhen I eventually crashed I had to be completely honest about my physical stateIn context ↗ | Not stated |
| 2025-03-30 | quit job, mostly bedbound, lowest point in yearsI’m currently at the lowest point I’ve been at in years (forced to quit my job, mostly bedbound to the point he is carrying me to and from the toilet 50% of the time)In context ↗ | Severe |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
When I eventually crashed I had to be completely honest about my physical state
In context ↗