ME/CFS
Outcome unclear
ME/CFS with MCAS, histamine intolerance and wheelchair use; pacing and vitamin D tried
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill for
- Not stated
- Last post
- Apr 2026
In their words
- Condition: ME/CFS
maybe this anaerobic way is overpowered and blocked in severe ME/CFS
In context ↗ - At worst: Severe
people are much more understanding/helping and easier when Im in a wheelchairs as it is a clear setting
In context ↗
Read from 10 of their posts and comments; links to the 7 this page draws on
Summary
Swan 12974 wrote in ME/CFS forums about living with the illness, with MCAS and histamine intolerance and using a wheelchair, and paced using smartwatch resting heart rate charts. Their morning routine was two hours of lying down, meditation and gentle stretches, and screens were limited. Vitamin D caused itching and other reactions that settled at 2,000-3,000 IU after two months; higher doses, B vitamins, vitamin C and magnesium caused problems.
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What they tried
Also tried
Garmin smartwatch and resting heart rate chart· Helpedvit D· WorseVitamin K· WorseVit C· WorseVitamins of the B group / B-Complex· WorseMagnesium (glycinate, citrate, oxide, malate)· WorseWhey protein· Not saidGuided meditation, MBSR bodyscan, mindful breathing, yoga stretches· Not saidPraying· Not saidPacing· Not said
Their words about each treatment
- vit D · Worse
I used to have a bad Reaction from vit D too, Like being itchy from inside, a wired and weird Feeling
In context ↗ - Vitamin K · Worse
I dont tolerante Vitamin K well, which is Part of the Supplement often.
In context ↗ - Vit C · Worse
Higher doses Vit C and Vitamins of the B group are really bad for me
In context ↗ - Vitamins of the B group / B-Complex · Worse
Higher doses Vit C and Vitamins of the B group are really bad for me ... I have the same effect with B-Complex, can't take it.
- Magnesium (glycinate, citrate, oxide, malate) · Worse
Malat ist ok but my Body does Not Like the Magnesium
In context ↗ - Whey protein · Not said
Whey ist non problematic for me with MCAS/Histamin Intolerance.
In context ↗ - Guided meditation, MBSR bodyscan, mindful breathing, yoga stretches · Not said
Long meditation lying down (40 minutes, check MBSR, JKZ-App, bodyscan or so called sitting meditation) ... After that I do some little yoga like stretches
In context ↗ - Garmin smartwatch and resting heart rate chart · Helped
The most helpful for me actually is the nightly resting heart rate, as it clearly shows if I overworked the last day(s)
In context ↗ - Pacing · Not said
if my pacing is enough (falling RHR or at baseline)
In context ↗
Adverse events
- Vitamin D and sun exposure“I used to have a bad Reaction from vit D too, Like being itchy from inside, a wired and weird Feeling.” In context ↗ Side effects
- Vitamin K and K2“I dont tolerante Vitamin K well, which is Part of the Supplement often.” In context ↗ Side effects
- Vitamin C“Higher doses Vit C and Vitamins of the B group are really bad for me” In context ↗ Made symptoms worse
- Magnesium“glycinat has Bad Side effects on me, idk why” In context ↗ Side effects
- Magnesium“citrat is triggering my MCAS” In context ↗ Made symptoms worse
- “I have the same effect with B-Complex, can't take it.” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Mast cell (MCAS) & allergies
citrat is triggering my MCAS
In context ↗ - Post-exertional malaise
it clearly shows if I overworked the last day(s) (Rising RHR)
In context ↗