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ME/CFS Outcome unclear

ME/CFS with post-exertional malaise; high-dose thiamine tried

Condition
ME/CFS
At worst
Not stated
Ill for
Not stated
Last post
Jul 2026
In their words
  • Condition: ME/CFSHigh-dose thiamine has been the only thing I’ve found that made a *significant* change in my PEM. In context ↗
Read from 2 of their posts and comments; links to the one this page draws on

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Summary

Badger 56496, posting in r/cfs in July 2026, said high-dose thiamine was the only thing they had found that made a significant change in their post-exertional malaise. They began with 300 mg benfotiamine daily and later took that plus 100 mg thiamax, noting that both absorb better than regular thiamine and should not be taken near caffeine.

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What they tried

Their words about each treatment
  • High-dose thiamine (benfotiamine, Thiamax) · Helped a lotHigh-dose thiamine has been the only thing I’ve found that made a *significant* change in my PEM. In context ↗

Symptoms mentioned

Their words about their symptoms
  • Post-exertional malaiseHigh-dose thiamine has been the only thing I’ve found that made a *significant* change in my PEM. In context ↗

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