ME/CFS
Moderate → relapsed
Very sick with ME/CFS, unable to work, improved then relapsed to moderate after exercise
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- Not stated
- Last post
- Oct 2026
In their words
- Condition: ME/CFS
I'm mild-moderate as well (moderate now because I pushed myself into a crash) ... I experienced PEM
In context ↗ - At worst: Moderate
I couldn't do anything else - work, or go to school, or accomplish all the basic tasks of living
In context ↗ - Now: Relapsed
I was able to crawl myself back into mild and then ofc recently pushed myself back into moderate ... now I am moderate again and lost all of the fitness I had previously worked so hard for
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
They became very sick with a mystery illness at 16, unable to work, study or manage basic tasks, and crashed on the couch after any effort. The illness eased to mild by their mid-20s, worsened again after a COVID infection, and they clawed back to mild. Encouraged by doctors to exercise, they pushed through post-exertional malaise and crashed back to moderate, losing the fitness they had built.
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What they tried
Also tried
Their words about each treatment
- exercise · Worse
I pushed through PEM because doctors always just encouraged me to exercise more and now I am moderate again
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| age 16 | very sick with a mystery illness at 16I got very sick with a mystery illness when I was 16In context ↗ | Moderate |
| mid-20s | improved to mildimproved to mild by my mid-20sIn context ↗ | Mild |
| after COVID | got worse again after COVIDthen got worse again after I got COVIDIn context ↗ | Moderate |
| — | crawled back into mildI was able to crawl myself back into mildIn context ↗ | Mild |
| recently | crashed into moderate after pushing through PEMthen ofc recently pushed myself back into moderateIn context ↗ | Moderate |
| 2026-10-26 | moderate after a crashmoderate now because I pushed myself into a crashIn context ↗ | Moderate |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I experienced PEM, and I couldn't do anything else
In context ↗