ME/CFS
Outcome unclear
ME/CFS crash cycle after prednisone, pacing the only thing that works
- Condition
- ME/CFS
- At worst
- Not stated
- Ill for
- Not stated
- Last post
- Oct 2026
In their words
- Condition: ME/CFS
that pacing trick is everything, learning to not use energy when you have it feels so counterproductive but it's the only thing that actually works
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
They describe pacing, learning not to spend energy when they have it, as the only thing that actually works for them, though it took them a long time to figure out. They also describe a wired/crash cycle after prednisone as familiar, having had a similar experience while tapering off medication for a different condition, saying the body forgets how to regulate itself. Little else about their illness, its severity or its course is given.
Ask Miruvor AI
What they tried
Also tried
Their words about each treatment
- prednisone · Not said
the wired/crash cycle after prednisone is so familiar ... when I was tapering off for a different condition
In context ↗ - pacing · Helped
it's the only thing that actually works. took me way too long to figure that out
In context ↗
Adverse events
- Corticosteroid pulses“the wired/crash cycle after prednisone is so familiar, had similar thing when I was tapering off for a different condition.” In context ↗ Withdrawal problems