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ME/CFS Severe → no benefit

ME/CFS gone from moderate to severe after wrong antibiotic, still severe

Condition
ME/CFS
At worst
Severe (mostly bedbound)
Ill for
Not stated
Last post
Sep 2026
In their words
  • Condition: ME/CFSmy drop into severe ME In context ↗
  • At worst: Severecracked the floor for me between moderate and severe and has brought me to my current worst stage In context ↗
  • Now: No benefithas brought me to my current worst stage In context ↗
Read from 3 of their posts and comments; links to the 3 this page draws on

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Summary

A Reddit user with ME/CFS, Hashimoto's, CIRS and SIBO—the latter three diagnosed through a functional medicine doctor after psych facilities believed they had catatonic depression—described themselves as having gone from moderate to severe. A course of ciprofloxacin, which they say was the wrong antibiotic, pushed them into severe ME, their current worst state; their infectious disease doctor suggested it may have been a trigger. They are looking for health tracking tech to help pace; a cheap fitness tracker proved inaccurate.

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What they tried

Also tried

Their words about each treatment
  • Fitbit watch · No changeI bought a really cheap version of a Fitbit watch and it wasn’t accurate/useful and I threw it out after a few months. In context ↗
  • functional health doctor · Not saidwithout a functional health doctor my Hashimoto’s, CIRS, and SIBO would never have been caught and diagnosed in the first place In context ↗
  • cipro (ciprofloxacin) · Much worsewas finally what cracked the floor for me between moderate and severe and has brought me to my current worst stage In context ↗

Their path

Very severeSevereModerateMildNear normalRecovered

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
—living with ME/CFS at a moderate levelcracked the floor for me between moderate and severe In context ↗Moderate
2026-09-26dropped from moderate to severe ME after a course of ciprofloxacina stupid round of cipro that was actually the WRONG ANTIBIOTIC for what it was treating was finally what cracked the floor for me between moderate and severe and has brought me to my current worst stage In context ↗SevereCiprofloxacin (Cipro)

Adverse events

  • Ciprofloxacin (Cipro)“a stupid round of cipro ... cracked the floor for me between moderate and severe and has brought me to my current worst stage” In context ↗ Made symptoms worse

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