ME/CFS
Outcome unclear
ME/CFS investigated with right heart catheter and CPET, and Mestinon tried
- Condition
- ME/CFS
- At worst
- Not stated
- Ill for
- Not stated
- Last post
- Oct 2020
In their words
- Condition: ME/CFS
why me/CFS affects us the way it does
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
Harbor 58097 had ME/CFS and was investigated by Dr Systrom and Dr Waxman, who did a right heart catheterisation and then a CPET with the catheter still in place; they said this gave them an answer with medical evidence. They reported that Mestinon helped them. The testing gave a look at how the heart, lungs, muscles and nerves react during exertion.
Ask Miruvor AI
What they tried
Also tried
Their words about each treatment
- mestinon · Helped
Side note: mestinon did help me.
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | After |
|---|---|---|
| — | onset of ME/CFSwhy me/CFS affects us the way it doesIn context ↗ | |
| 2020-10-17 | mestinon helpedSide note: mestinon did help me.In context ↗ | Mestinon / pyridostigmine |
| 2020-10-17 | still reporting benefit from mestinon and having an explanation of the illnessmestinon did help me. But the greatest gift dr Systrom gave me was an answerIn context ↗ |