ME/CFS
Severe → no benefit
Barely moving off the sofa with ME/CFS, still limited despite methyl folate and B12
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill for
- Not stated
- Last post
- May 2018
In their words
- At worst: Severe
I may spend days not moving off it much
In context ↗ - Now: No benefit
I may spend days not moving off it much
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
A person with ME/CFS described spending days barely moving off a sofa, though being on the sofa made them feel more present than being cooped up in their bedroom all day. They took methyl folate, methyl B12 and B6, which they said cut migraines from 20 to 8 a month and gave a break from pain. Their overall function remained limited.
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What they tried
Their words about each treatment
- Methyl folate · Helped
Methyl folate, methyl b12 and b6 has been my saviour too. I was having 20 migraines a month but since taking the supplement they've reduced to 8 a month
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| — | 20 migraines a month before supplementsI was having 20 migraines a monthIn context ↗ | Severe |
| 2018-05-15 | migraines reduced to 8 a month after methyl folate, methyl B12 and B6; still days barely moving off sofasince taking the supplement they've reduced to 8 a monthIn context ↗ | Severe |
Symptoms mentioned
Their words about their symptoms
- Headaches & migraine
I was having 20 migraines a month but since taking the supplement they've reduced to 8 a month.
In context ↗