Bedridden with long COVID headaches and dizziness, now somewhat better with diet and oxygen
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 11 months
- Last post
- Feb 2021
In their words
- Condition: Long COVID
I got sick at the beginning of july and am still having horrible headaches
In context ↗ - At worst: Severe
horrible headaches that have pretty much made me bed ridden
In context ↗ - Now: Somewhat better
Im mostly feeling better now, but it kicks up again if I get stressed, or eat bad.
In context ↗ - Began after: COVID
I'm 30, had covid in March as well
In context ↗
Read from 7 of their posts and comments; links to the 7 this page draws on
Summary
Crest 91339, a 30-year-old woman, caught covid in March 2020 and was bedridden by daily headaches that worsened after exercise, with heart racing and dizziness. A four-month relapse left her down for two weeks. Oxygen at the ER eased the headaches and a strict low-inflammatory diet left her mostly better by October 2020, though stress or bad food set it off; she caught covid again in February 2021.
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What they tried
What they credit
Also tried
Their words about each treatment
- tramadol · Much worse
And tramadol which doesn't really help that much.
In context ↗ - nsids · Worse
I was rotating tylenol with nsids but they werent doing anything for the pain
In context ↗ - tylenol · No change
But it didn't do anything for me pain wise so I'm not super inclined to push it.
In context ↗ - anti inflammatory diet · Helped
I went on a really strict diet, basically a mix of a low inflammatory diet and diabetes diet because my insulin came back high
In context ↗ - peppermint oil · No change
I have tried peppermint oil but no difference. But I didn't try it for very long so I'll give it another go.
In context ↗ - oxygen · Helped
I felt some relief almost immediately, the next day it has subsided.
In context ↗
Approaches: Diet
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 4 months after onset: the story doesn’t say how ill they were before that. 3 steps say too little to place on the scale and are only in the table. The line stops at their last step that can be placed; how they are now is in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| March 2020 | caught covidI'm 30, had covid in March as wellIn context ↗ | Not stated | |
| July 2020 | relapse at 4 months, possibly caught it againI had a relapse at 4 months, it was like catching it all over again. I was down for about 2 weeks with all the same symptom's.In context ↗ | Severe | |
| August 2020 | crashed after exercising; daily headaches, bedriddenhorrible headaches that have pretty much made me bed riddenIn context ↗ | Severe | |
| September 2020 | headache bout ended with oxygen at two ER visitsThey ended up putting me on oxygen and I felt some relief almost immediately, the next day it has subsided.In context ↗ | Not stated | |
| October 2020 | mostly feeling better on a strict low-inflammatory dietIm mostly feeling better now, but it kicks up again if I get stressed, or eat bad.In context ↗ | Mild | Anti-inflammatory diet |
| February 2021 | caught covid againMy heart was getting better in general but now I have covid again as we speakIn context ↗ | Not stated |
Adverse events
- “I have been taking nsids but I gave myself a stomach ulcer so that's on the mend.” In context ↗ Gut side effects
- Paracetamol / acetaminophen (Tylenol, Panadol)“now the Tylenol hurts my tummy a bit too. Just brings back the ulcer ache a bit.” In context ↗ Gut side effects
- “I started having tachycardia that sent me to the ER. Now I can't seem to take them without my heart going crazy.” In context ↗ Heart rhythm problems
Symptoms mentioned
Their words about their symptoms
- Headaches & migraine
horrible headaches that have pretty much made me bed ridden
In context ↗ - Post-exertional malaise
Thought it was getting better and then I made the mistake of exercising. Prior to was getting them for 1-2 days a week. Now it's been everyday for the last 2 1/2 weeks.
In context ↗ - Heart symptoms & palpitations
my heart races randomly, not when I breath
In context ↗ - POTS & dysautonomia
if I felt weak and dizzy ... oh like how I feel all the time now
In context ↗ - Gut problems
I gave myself a stomach ulcer so that's on the mend
In context ↗
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