ME/CFS crashes for three years, now nearly back to normal after it stopped randomly
- Condition
- ME/CFS
- At worst
- Not stated
- Ill before improving or writing
- 3 years
- Last post
- Apr 2024
In their words
- Condition: ME/CFS
Surprisingly my CFS is GONE!
In context ↗ - Now: Near normal
Surprisingly my CFS is GONE! ... I have to avoid certain foods because It will cause a mild crash, but I believe it's in remission?
In context ↗
Summary
Gull 14207 described three years of CFS crashes. In April 2024 they reported the CFS was gone and in remission, saying it stopped randomly after three years; they still avoided certain foods that caused a mild crash. They also said a treatment helped while they were immunocompromised.
Ask Miruvor AI
What they tried
What they credit
Also tried
Their words about each treatment
- Paxlovid · Helped a lot
I just finished mine! It helped so much since I'm immunocompromised.
In context ↗ - avoiding certain foods · Helped
I have to avoid certain foods because It will cause a mild crash ... I think that so partly the reason why I stopped having crashes?
- time / spontaneous remission · Helped a lot
Surprisingly my CFS is GONE! ... It took me 3 years to finally stop crashing
In context ↗
Approaches: Antivirals · Diet
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were | After |
|---|---|---|---|
| onset | CFS beganIt took me 3 years to finally stop crashingIn context ↗ | Not stated | |
| 2024-04-10 | CFS gone/in remission; avoids foods that cause mild crashSurprisingly my CFS is GONE! ... I have to avoid certain foods because It will cause a mild crashIn context ↗ | Near normal | Time and spontaneous remission |
Symptoms mentioned
Their words about their symptoms
- Gut problems
lettuces are hard to digest
In context ↗
Ask Miruvor AI
Similar stories
-
Bedridden with long COVID for three years, now nearly back to normal with time and pacing
Caught COVID in December 2019, before lockdown, and was mostly bedridden for three years as symptoms worsened. From year three she improved slowly, crediting time, rest, pacing, a gradual walking programme, daily antihistamines and gabapentin. A 2023…
-
Long COVID with over 70 symptoms, now much better with diet change and low-impact exercise
A former CrossFit athlete, she fell ill in August 2019 after travelling to China and later lost the ability to walk after pushing through exercise (Guillain-Barré). Over six years and five reinfections she went from over 70 symptoms to about 20 with diet…
-
Bed-bound with long COVID, now mainly housebound after Paxlovid and antibiotics
They caught COVID in Europe in December 2019 and have had long COVID for over six years. An attempt to exercise at the end of 2022 left them bed-bound with palpitations, swelling and gut problems. Paxlovid and cycled antibiotics moved them from bed-bound to…
-
Bedridden with long COVID, briefly improved after stellate ganglion block then relapsed
Cedar 97364 became ill with long COVID in January 2024 and was somewhat mild until a crash after overexertion left them bedridden. LDN helped early then lost effect; lumbrokinase caused severe fatigue, while nicotine patches and a niacin supplement caused…