Long COVID with daily fatigue, somewhat better on Vyvanse but still struggling
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 4 years
- Last post
- Jun 2024
In their words
- At worst: Moderate
This chronic fatigue is something else. It's absolutely debilitating.
In context ↗ - Now: Somewhat better
I have made SOME progress, at least in regards to some symptoms.
In context ↗
Read from 9 of their posts and comments; links to the 8 this page draws on
Summary
Plover 65475 became ill in mid-2020 and nearly four years later still described long COVID with debilitating daily fatigue, hair loss and daily intrusive thoughts. A stimulant (Vyvanse) helped the fatigue a lot, though most days it was not quite enough, and Lamictal, Wellbutrin and Klonopin were credited for mood and anxiety. A COVID vaccine helped a few symptoms. They reported some progress but still struggled most days.
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What they tried
What they credit
Also tried
Their words about each treatment
- the vaccine · Helped
I did actually get the vaccine when it became available. And it did help a few of my symptoms, thankfully.
In context ↗ - Vyvanse · Helped
Vyvanse has been a HUGE help with my chronic fatigue
In context ↗ - lamictal · Helped
Lamictal has been a godsend.
In context ↗ - wellbutrin · Helped
Wellbutrin with the lamictal has been a good combination.
In context ↗ - abilify · Helped
put me on wellbutrin and abilify. It's been a wonderful combination for me
In context ↗ - Klonopin · Helped
Klonopin on the side has been a huge lifesaver.
In context ↗
Approaches: Benzodiazepines · Other antidepressants · Other drugs and medicines · Stimulants
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 2.9 years after onset: the story doesn’t say how ill they were before that. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| June 2023 | debilitating daily fatigue, nodding off while driving and talkingThis chronic fatigue is something else. It's absolutely debilitating.In context ↗ | Moderate | |
| July 2023 | dose of lamictal raised, wellbutrin and abilify addedMy doctor upped my dose of lamictal, and put me on wellbutrin and abilify. It's been a wonderful combination for meIn context ↗ | Mild | Bupropion (Wellbutrin) |
| July 2023 | almost month-long flare upI just got over an almost month long flare up 😖In context ↗ | Moderate | |
| June 2024 | stimulant eased fatigue; stopped nodding offMy doctor has put me on a stimulant to help with that, thankfully. Though I still struggle most days.In context ↗ | Mild | Lisdexamfetamine (Vyvanse, Elvanse) |
| June 2024 | some progress but still hard most daysI have to remind myself that I have made SOME progress, at least in regards to some symptoms.In context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Hair loss
It's gotten better, though I still have "flare ups" where it starts falling out again.
In context ↗ - Anxiety & low mood
The intrusive thoughts come almost daily.
In context ↗ - Sleep problems
At least I'm not nodding off while driving or having conversations
In context ↗
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