ME/CFS
Severe → no benefitNeeds ongoing treatment
Bedbound with severe ME/CFS, tried pacing and cannabis, no recovery
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill for
- Not stated
- Last post
- Dec 2025
In their words
- Condition: ME/CFS
I may have severe ME and be bedbound.
In context ↗ - At worst: Severe
But I'm already bedbound
In context ↗ - Now: No benefit
I may have severe ME and be bedbound.
In context ↗
Summary
They reported severe ME/CFS and being bedbound; pacing, they said, let them keep living independently and enjoy television, books and hobbies in bed. They watched for worsening, which for them looked like noise sensitivity, and used cannabis despite guilt, saying it seemed to improve some symptoms. No onset date or trigger was given, and they described no recovery from ME/CFS.
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What they tried
Also tried
Their words about each treatment
- THC (weed) · Helped
But I’m already bedbound and it seems to improve some symptoms.
In context ↗ - pacing · Helped
pacing has allowed me to continue to live independently, to enjoy things like television and books and screens and hobbies in bed.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| — | ME/CFS onsetI may have severe ME and be bedbound.In context ↗ | Not stated |
| 2025-12-26 | Severe ME, bedboundBut I'm already bedboundIn context ↗ | Severe |
| 2025-12-29 | Still severe and bedbound, maintaining independence with pacingI may have severe ME and be bedbound. But pacing has allowed me to continue to live independently, to enjoy things like television and books and screens and hobbies in bed.In context ↗ | Severe |
Symptoms mentioned
Their words about their symptoms
- Gut problems
I do monitor for CHS around nausea
In context ↗ - Light & noise sensitivity
It looks like noise sensitivity, for example.
In context ↗