ME/CFS with PEM and food-triggered crashes, now somewhat better with diet changes and LDN
- Condition
- ME/CFS
- At worst
- Not stated
- Ill before improving or writing
- Not stated
- Last post
- Feb 2026
In their words
- Condition: ME/CFS
Even still I have pem and such but overall I'm doing ok
In context ↗ - Now: Somewhat better
Even still I have pem and such but overall I'm doing ok, atleast not crashing from food anymore
In context ↗
Summary
The Reddit user described ME/CFS with post-exertional malaise and crashes triggered by food. By February 2026 they reported cutting out cheese, dairy and high-histamine foods and eating a high-fiber diet, along with medications such as low-dose naltrexone. They still had PEM but said they had stopped crashing from food and were doing okay overall. They also noted crashing hard when stopping PQQ.
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What they tried
What they credit
Also tried
Their words about each treatment
- low dose abilify · Not said
The 3 main treatments are low dose abilify, low dose naltrexone, and ketotifen.
In context ↗ - low dose naltrexone · Not said
And taking meds like ldn and others ofc
In context ↗ - pqq · Helped
For the pqq I find that I crash hard if I go off of it
In context ↗ - Cutting out cheese, diary, and anything super high in histamine · Helped
Cutting out cheese, diary, and anything super high in histamine ... atleast not crashing from food anymore
In context ↗ - very high fiber diet · Helped
a very high fiber diet
In context ↗
Approaches: Diet · Supplements
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | After |
|---|---|---|
| — | ME/CFS with PEM and food-triggered crashesEven still I have pem and suchIn context ↗ | |
| 2026-02-10 | stopped crashing from food after diet change; still has PEMoverall I'm doing ok, atleast not crashing from food anymoreIn context ↗ | Low-histamine diet |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
Even still I have pem and such
In context ↗ - Mast cell (MCAS) & allergies
Cutting out cheese, diary, and anything super high in histamine
In context ↗
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