ME/CFS
Moderate → no benefit
ME/CFS fatigue with unpredictable flares, no improvement from phone notes or activity list
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill for
- Not stated
- Last post
- Jul 2025
In their words
- Condition: ME/CFS
My fatigue flares were too unpredictable.
In context ↗ - At worst: Moderate
Gentle yoga, breathing, walking in place for 2 minutes, that kind of thing. I also built in recovery windows afterward.
In context ↗ - Now: No benefit
For me, the mental side of fatigue is just as tough as the physical part.
In context ↗
Summary
They describe chronic fatigue with unpredictable flares that leave them wiped out, and say the mental side is as tough as the physical. Bullet journaling did not stick; now they jot notes on their phone when they feel a shift. They made a list of things they could do on green-light versus red-light days, doing gentle yoga, breathing or two minutes of walking in place, with recovery windows after; the list helped them feel they were still showing up.
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What they tried
Also tried
Their words about each treatment
- bullet journaling · Not said
I tried bullet journaling before but couldn’t keep it up. My fatigue flares were too unpredictable.
In context ↗ - jotting notes in my phone · Helped
even that small effort helps. It’s like giving myself credit for surviving the hard hours.
In context ↗ - green light / red light day activity list · Helped
I made a list of things I could do on “green light” days versus “red light” days. That helped me feel like I was still showing up even when I was wiped out.
In context ↗ - Gentle yoga, breathing, walking in place for 2 minutes · Helped
Gentle yoga, breathing, walking in place for 2 minutes, that kind of thing.
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were |
|---|---|---|
| — | chronic fatigue with unpredictable flaresMy fatigue flares were too unpredictable.In context ↗ | Not stated |
| 2025-07-04 | plans activity by green-light and red-light days, with recovery windows afterGentle yoga, breathing, walking in place for 2 minutes, that kind of thing.In context ↗ | Moderate |